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Post Time: 24/06/2008 09:31:28 |
JP
Total Posts: 2
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I read somewhere in this site that someone was desparately tryimg to obtain an income after having to leave their job due to ES. Can't find it now - not good on computer - still I typed this offline.
JP -
I am ES but was eventually diagnosed as having ME, many of the symptoms are similar and very varied. The test by a specialist was "can you walk in a straight line", the hospital room was alive with radiation of all types especially masses of fluorescent lights, I staggered along. That was it, I had ME.
People with diagnosed ME get incapacity benefit.
I wish her the very best of luck - don't give up the battle.
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Post Time: 26/08/2008 08:53:44 |
Ryan
Total Posts: 8
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I got incapacity benefit and my doctor put down electrosensitivity. I think I am fortunate to have a very understanding doctor.
I have also received a letter from the health protection agency, recognising that there are people with sensitivities to electromagnetic fields.
I do hope this helps. Maybe you should change your doctor and find one that recognises electrosensitivity. |
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Post Time: 04/09/2008 14:44:12 |
asurisuk
Total Posts: 23
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getting a letter from the HPA is a really good idea. I've heard that there's going to be a new IB form launched in October - don't know if anyone else has heard anything - so a good GP and the kind of letter you speak of could help alot, as its not a good time to have an unrecognised illness. My GP wrote a letter to HB dept at some point saying that I reported that i suffered from ES, but she only wrote that one sentence. |
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Post Time: 12/09/2008 09:14:17 |
topazg
Total Posts: 9
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If possible, and with any personal information removed, I would dearly love to have a copy of the HPA letter. I have concessions that ES as a condition exists, but never that it is actually related to exposure to electromagnetic fields. If this really is the case in your letter it would be extremely useful to have as evidence against them! |
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Post Time: 10/12/2008 09:25:03 |
peter1000000
Total Posts: 8
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I have to say that i too have a letter from the HPA I think the same to ryans, It does state that there are some people who report suffering from es but they go on to say that the only effect they find is facial skin symptoms and there is no consistent symptom type attributed source association. So dont count on that too much as they are basteds who will try to wiggle out of admitting liability for anything to do with ES or that it even exists.
peter |
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Post Time: 10/12/2008 09:39:12 |
peter1000000
Total Posts: 8
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PS the new benefit being launched in oct was employment support allowance and it replaces income support and incapacity benefit, it sounds like a way to get less people through the benefit door, again basteds.
peter |
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Post Time: 16/03/2009 09:28:57 |
TORCHWOOD
Total Posts: 19
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My Dr signed me off as ES, I then went on to claim ESA which gives £60 per week, you have to fill out med forms and prob have a med. But where I think this might be helpful is that then will be put under the wing of an employment advisor who can seek work for you and hopefully act as some kind of moderator once you are placed on a work trial. If the trial does not work out then you are straight back on the £60. I have been trying to obtain or rather keep gainful employment for around 5yrs, bassically struggling with ES in the wokplace, so what the heck lets give this a go, it better than nothing. PS for those who need to sit far away from their pcs/laptops try ZOOMTEXT 8.1, this is a really good magnification software which new it is v.expensive but I bought a copy from EBAY for £30 save your eyesight somewhat.
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Post Time: 01/07/2010 09:44:24 |
Researcher
Total Posts: 191
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Try these guys?
http://www.radar.org.uk/radarwebsite/tabid/0/default.aspx
The Royal Association for Disability Rights (RADAR)
Our vision is a just and equal society whose strength is human difference.
Our mission is to enable individuals, networks and policy-makers to do things differently.
RADAR is a national network of disability organisations and disabled people. We represent our members by fast-tracking your opinions and concerns to policy-makers and legislators in Westminster and Whitehall, and launching our own campaigns to promote equality for all disabled people.
Formed in 1977 as the Royal Association for Disability and Rehabilitation, RADAR is a national organisation run by and working for disabled people. We have a membership of over 800 disability organisations and individuals.
RADAR is the UK's leading pan-disability charity working to represent the need and expectations of over 11 million disabled people in the UK.
RADAR plays a key role at the heart of the disability movement, acting with independence to clarify and channel the needs and expectations of disabled people and organisations to Westminster and Whitehall.
In support of this, RADAR pioneers upbeat and proactive campaigns to bring about changes in individual attitudes and behaviour. A key ingredient in these is our strategic external alliances and partnerships in support of social inclusion for disabled people. RADAR recognises that, to facilitate disabled people's full participation in our communities, there is a need to work broadly not narrowly and to explain and engage rather than to hector.
Contact Us @ RADAR: 12 City Forum, 250 City Road, London, EC1V 8AF.
By phone: 020 7250 3222 - By fax: 0870 141 0337 - By minicom: 020 7250 4119 - By email: radar@radar.org.uk
Reg. Charity No. 273150 - Company limited by guarantee reg. no. 1295856 - VAT Reg No. 233183485 |
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Post Time: 07/07/2010 10:26:27 |
TORCHWOOD
Total Posts: 19
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I was on ESA for one year (£65 per week) my Dr signed me off every 3 months as ES. I forgot to go to my medical (twice ! so they kicked me off it !! and now I have no income at all, as job seekers allowance will not pay out to me as the year they look at for NI contributions was the yrear I got sacked for being ES and started down the part time route so did not earn a lot that year. I doubt if I would have got through the medical anyway as I am fit enough to work but where and what I do not know ? |
